DIY SOS star Dylan Meyers passed away on Friday after a lifelong battle with a stunted growth syndrome.
The 11-year-old, who appeared on an episode of the BBC series with his family, battled the ‘Peter Pan’ condition, which stunted his growth and left him with the mind and body of a baby, throughout his life.
His parents, Danielle and Richard Myers, shared a heartfelt tribute to him, announcing his death via their Facebook page for him, named Dylan’s Story.
Heartbreaking: DIY SOS star Dylan Meyers passed away on Friday after a lifelong battle with a stunted growth syndrome
In the heartbreaking post, they said they were ‘broken forever but always together’.
The family, who are from Ongar, Essex, had been using the page to give updates on Dylan’s condition, as he was suffering form a multitude of health implications due to the syndrome.
In the post, they shared: ‘It’s with the heaviest broken hearts that we let you know our beautiful brave heroic little Dylan took his last breath in our arms at 14:10 this afternoon.’
Peter Pan: The 11-year-old, who appeared on an episode of DIY SOS with his family, was known as ‘the real life peter pan’
‘He fought so very hard to the bitter end but physically couldn’t fight anymore.
‘It was Dylan’s story and he wrote every page and enjoyed every minute of his too short little life. His amazing smile and giggle will live on in our hearts forever ♥️ but unfortunately this story has had come to an end.
‘Sleep tight baby boy. Until we meet again. Broken forever but always together’
Alongside the post was a collection of heartbreaking pictures, which included one of his pass to Great Ormond Street Hospital.
Tragic: His parents shared a heartfelt tribute to him, announcing his death via their Facebook page for him, named Dylan’s Story
Hospital: Alongside the post was a collection of heartbreaking pictures, which included one of his pass to Great Ormond Street Hospital
Miracle: Dylan was dubbed a ‘miracle baby’ after doctors predicted he would not live past 12 months old
Dylan’s condition was extremely rare and unidentified, leaving him in constant pain all the time as he underwent treatment for a list of health complications.
These included organs which are mirrored on the opposite side of his body, daily apnea attacks (stops breathing), Seizures, Arthritis, Inflammatory Bowel Disease and he the suppressing of his Immune system.
When Dylan was eight, he weighed just 12kg, was 89cm tall and fit into the clothes of a 12-month-old baby – only growing 1 mm per year.
Family: Dylan with his parents, Danielle and Richard Myers, and older sister Scarlett
His parents would often have to have to resuscitate him when he ‘died in their arms’, due to apnea attacks where he didn’t breathe for 30 seconds.
Dylan was dubbed a ‘miracle baby’ after doctors predicted he wouldn’t live past 12 months old.
Back in 2016, DIY SOS filmed at Great Ormond Street Hospital, where Dylan regularly visited for treatments alongside his mum Danielle, who has campaigned to raise awareness about undiagnosed conditions.
The show joined forces with the Chelsea Flower Show to transport an entire garden from the show to the children’s hospital – lifting it over buildings and rebuilding it on the hospital’s roof.
So sad: The post also featured a sweet picture of Dylan holding his parents’ hands
Dylan was selected to feature in the show alongside two other children – but at the time, Danielle said he ‘didn’t know’ that he was on television, explaining that it was about the memories for her.
The Dylan’s Story page has been sharing updates on his condition throughout the past week, noting that his health was deteriorating.
He shared that he was ‘really struggling’, and revealed that the hospital had proned him to help his lungs.
The family began a fund for sick and disabled children, and have so far raised £36775.
Bond: His parents shared a heartfelt collection of pictures featuring their hands together in the post